Why Patient Data Ownership is Essential for Advancing Personalized Medicine
By
M. Abimbola Mosobalaje
Summary
The article argues that data sovereignty — giving patients ownership and control over their health data — is essential for unlocking the full potential of personalized medicine. It explains how precision medicine relies on vast datasets to tailor treatments, but current systems often strip patients of agency over their information. The piece advocates for patient-centric data models, including consent-based sharing, data cooperatives, and blockchain-enabled ownership, positioning data sovereignty as both an ethical imperative and a practical necessity for advancing healthcare innovation.
Source
bskyWhy Patient Data Ownership is Essential for Advancing Personalized Medicinehackernoon.comKey quotes
· 3 pulledHealth data is pharma's new currency — but only if patients own it.
Data sovereignty is the key to unlocking precision medicine.
Without patient control over their health information, personalized medicine cannot reach its full potential.
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