Health Data Governance: Who Owns, Profits From, and Protects Patient Information?
By
Nelly Abulata, MD, PhD, MBA, Mitchell G. Josephson, MBA
Summary
This article, presented as a podcast transcript from the Digital Health Pulse, features Dr. Nelly Abulata discussing the parallels between blood test data governance and the emerging challenges of health data ownership, privacy, and monetization. The piece explores who owns patient-generated health data, who profits from it, and who protects it — drawing on the hematology lab's established lifecycle (collection, analysis, reporting, storage, governance) as a framework for understanding digital health data. It raises critical questions about patient trust, data control, and the ethical use of health information in an increasingly data-driven healthcare ecosystem.
Source
Twitter / XHealth Data Governance: Who Owns, Profits From, and Protects Patient Information?mdsc.peKey quotes
· 3 pulledAs hematologists, we're very familiar with the life cycle of a blood test. We know how it's collected, analyzed, reported, stored, and governed. But healthcare is now generating a very different kind of diagnostic input.
Health data can drive better care, but patients must first be able to trust who controls it — and understand why it is being used.
Data is the new blood test.
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