Taking control: Inspiring others to beat rare diseases
Karen Owen lives with a condition called hereditary angioedema (HAE). She has learned to take control of HAE through self-management techniques and peer support.
Read the full articleYou might also wanna read
NIH and NIDCR Advance First-in-Human Trial for Ultra-Rare Jansen's Disease Therapy
nidcr.nih.gov·17h ago

MEP calls for Ireland to increase testing done on newborn babies for rare conditions
TheJournal.ie·1d ago
The UK should seek to be a European leader for rare disease medicine, says new report
ABPI·4d ago
ABPI response to publication of England's Rare Diseases Action Plan 2026
ABPI·4d ago
ABPI response to England's 2023 Rare Disease Action Plan
ABPI·5d ago
ABPI response to Northern Ireland's Rare Diseases Action Plan
ABPI·5d ago

Comments
Sign in to join the conversation.
No comments yet. Be the first.