Qualitative study examines benefits and challenges of patient-led conferences in healthcare research
Summary
This qualitative study explores the benefits, challenges, and support needs of patient partners leading a patient-led conference called "For Patients, By Patients" (PxP). Through semi-structured interviews with 13 steering committee members, the researchers identified four core themes: institutional support, conducive environmental characteristics, personal growth, and new possibilities. Key findings highlight that patient partners are capable of leading events that foster interpersonal relationships and advance patient engagement practices, with important facilitators including institutional support and governance that considers power dynamics, accessibility, and intersectionality.
Source
bskyQualitative study examines benefits and challenges of patient-led conferences in healthcare researchbmjopen.bmj.comKey quotes
· 5 pulledPatient engagement is the practice of 'meaningful and active collaboration [of patient partners] in governance, priority setting, conducting research and knowledge translation.'
Understanding more about the intricacies of patient-led events is necessary if we wish to support patient leadership as a valuable form of patient engagement.
Patient partners are capable of leading events which promote interpersonal relationships and advance patient engagement practices and governance.
Important facilitators include institutional support and governance that considers power dynamics, accessibility and intersectionality.
Power dynamics, intersectionality, and accessibility were also identified as central to supporting patient leadership and building safe and supportive environments.
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