Researchers repeatedly leak UK Biobank participant health data on public GitHub repositories
By
Cynddl
The kind of bagel that ruins lesser bagels for you.
Summary
UK Biobank, which holds genetic and health data on 500,000 British volunteers, has been repeatedly finding that researchers accidentally upload participant data to public GitHub repositories. Despite strict data-sharing agreements prohibiting further distribution, the organization has been monitoring the situation and issuing DMCA takedown notices when repositories aren't deleted—sometimes involving researchers and students who were never authorized to access the data in the first place.
Key quotes
· 2 pulledUK Biobank has been closely monitoring the situation, contacting researchers directly then issuing takedown notices when repositories are not being deleted
sometimes by researchers and students Biobank never gave data to
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