German Medical Registry Act faces criticism over data protection and implementation flaws in Bundestag hearing
By
Marie-Claire Koch
Baker's choice. Dense with flavour, light on filler.
Summary
The planned Medical Registry Act (Medizinregistergesetz/MRG) in Germany has received general approval from experts, but during a public hearing in the Bundestag's Health Committee, calls for improvements dominated. Representatives from research institutions, registry operators, patient organizations, industry, and data protection bodies welcomed the attempt to improve the use of medical data, but simultaneously highlighted significant problems regarding data quality, financing, and implementation. Key concerns centered on data protection issues and the planned implementation of the research identifier (Forschungskennziffer) and data quality standards.
Key quotes
· 3 pulledDas geplante Medizinregistergesetz (MRG) stößt bei Fachleuten zwar grundsätzlich auf Zustimmung, in der öffentlichen Anhörung des Gesundheitsausschusses des Bundestages überwogen jedoch die Forderungen nach Nachbesserungen.
Vertreter von Forschungseinrichtungen, Registerbetreibern, Patientenorganisationen, Industrie und Datenschutz begrüßten zwar den Versuch, die Nutzung medizinischer Daten zu verbessern.
Zugleich machten sie deutlich, dass aus ihrer Sicht erhebliche Probleme bei der Datenqualität, Finanzierung, ...
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