Improving care for rare diseases
Rare diseases present a substantial challenge for healthcare systems, as their high clinical heterogeneity and low prevalence complicate the accumulation of knowledge regarding…
Read the full articleYou might also wanna read
Building infrastructure for better rare disease care
Rare diseases are anything but, with half a million patients in Sweden alone. Still, diagnostic expertise is often limited among healthcare
AI model helps diagnose rare diseases in patients after years of uncertainty, study finds
The team hopes its models can help patients get diagnoses for rare diseases.
abcnews.com·19d agoEquity in the age of advanced therapies: insights from haemophilia
In Laurence Woollard's latest blog for Rare Disease Day, he reflects on how advanced therapies are being introduced within the NHS – highlig
Why Dementia Care Demands a Shift in Healthcare Thinking
Why Dementia care required new healthcare mindset. A Pastoral Thanatology Certification blog by American Institute of Health Care Profession
AI tools help diagnose 18 children with previously undiagnosed rare diseases, Boston Children's Hospital study finds
With the help of these tools, children with rare illnesses and symptoms may now find answers in a much shorter time frame than before.
nypost.com·18d ago
Unequal Access to New Myasthenia Gravis Therapies Across Europe Highlights Healthcare Disparities
New therapies are changing what is possible in generalised myasthenia gravis care, yet unequal access across Europe continues to hold patien
euractiv.com·16d ago
Comments
Sign in to join the conversation.
No comments yet. Be the first.