Brothers with FTD gene mutation honor mother with 33-marathon feat and Wimbledon Royal Box visit

British brothers Jordan and Cian Adams, who carry a rare genetic mutation that almost certainly leads to frontotemporal dementia (FTD), ran 33 marathons in 33 days to raise awareness and funds for the disease that killed their mother at age 52, the Associated Press reported. Their efforts raised nearly $2.7 million and earned them an invitation to sit in the Royal Box at Wimbledon, as well as a personal congratulatory letter from Prince William, according to AP.

Jordan (31) and Cian (25) Adams made sure to bring back little mementos from their day among the VIPs at the tennis tournament, including a program, the Royal Box seating chart with their names on it, and a hat, per CityNews and the Medicine Hat News. The brothers are creating and cherishing memories now with their partners because of what lies ahead. CityNews noted that they expect symptoms to begin in their mid-40s and are focused on funding research for a disease with no current cure.

2 sources

CityNewsBrothers who ran 33 marathons to spotlight dementia spend a day in the Royal Box at WimbledonMedicine Hat NewsBrothers who ran 33 marathons to spotlight dementia spend a day in the Royal Box at Wimbledon

"They’re creating and cherishing memories now with their partners because of what’s ahead."

WKMG News 6 and WDIV ClickOnDetroit both reported that the brothers ran 33 marathons in 33 days on their mission to raise awareness of frontotemporal dementia or FTD. The Independent also covered the feat, highlighting the scale of the challenge and the cause behind it.

3 sources

WKMG News 6Brothers who ran 33 marathons to spotlight dementia spend a day in the Royal Box at WimbledonWDIV ClickOnDetroitBrothers who ran 33 marathons to spotlight dementia spend a day in the Royal Box at WimbledonThe IndependentBrothers who ran 33 marathons to spotlight dementia spend a day in the Royal Box at Wimbledon

"British brothers Jordan and Cian Adams ran 33 marathons in 33 days on their mission to raise awareness of frontotemporal dementia or FTD."

The invitation to the Royal Box at Wimbledon and Prince William's letter served as a poignant recognition of their extraordinary effort. The Associated Press noted that the brothers are focused on creating memories and funding research, as they face an uncertain future due to the genetic mutation they inherited.