Patient reflects on decades of progress in sickle cell treatment

First New York patient cured of sickle cell disease using Lyfgenia gene therapy

Sebastien Beauzile, a 21-year-old living with sickle cell anemia, has become the first person in New York State to be cured of the disease u

First Louisiana patient functionally cured of sickle cell disease through gene therapy

A man in Louisiana has become the first person in the state to be functionally cured of sickle cell disease through gene therapy. He celebra

Navigating the final chapter: Reflections on aging, health scares, and finding peace at 97

At age 97, the author reflects on a recent health scare (a swollen ankle that led to cancer testing) and her surprisingly calm reaction to t

Living with Invisible Illness: The Burden of Looking Healthy While Chronically Ill

A personal essay from someone who has lived with an invisible chronic illness for 24 years, describing the burden of looking healthy while s

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New Medicaid Work Requirements Create Paperwork Burden for Seriously Ill Patients

DeAnna Brandon, a 48-year-old blood cancer survivor from North Carolina, fears that new Medicaid work requirements set to begin next year co