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The Overlooked 'In-Between' Phase of Chronic Illness: Diagnosed but Still Not Well

Health coach, patient advocate and wellness advisor, Amy Kurtz, breaks the silence about the crucial, painful, pervasive, and yet all too common phase of healing from chronic illness that has long gone overlooked…until now.

Opinionpersonalhealthchronic illness

amykurtz.com·@darthbender.bsky.social·1mo ago·2 min read

The Decade-Plus Diagnostic Journey for Hypermobile Ehlers-Danlos Syndrome Patients

Insightsciencehealth

Shared by @Medscape ↗

mdsc.pe1mo ago

70-Year-Old Runner Hospitalized After Insurer Delays Lifesaving Immunodeficiency Drug

Newshealthnews

Shared by @mcbridetd.bsky.social ↗

medpagetoday.com2mo ago

European patients turn to AI chatbots for medical guidance amid healthcare gaps

Newstechnologyhealth

Shared by @Medscape ↗

mdsc.pe2mo ago

Healthcare AI needs patient leadership in governance, argues Donna Cryer

Artificial intelligence is entering healthcare at a pace that, according to Donna R. Cryer, risks outpacing the governance structures needed to support it responsibly. Cryer believes hospitals, payers, pharmaceutical companies, and digital health organiza

Opiniontechnologyhealthai governance

thenextweb.com·@toppnews.bsky.social·3mo ago·5 min read

Personal Reflection on Using Proprietary Medical Devices for Diabetes Management

I wrote last month about my diabetes diagnosis this year and my difficult choice to wear a proprietary device (called a CGM) on my arm 24/7 to continuously monitor my glucose levels. Like my friend and colleague, Karen M. Sandler — who previou

Opinionpersonalhealthmedical technology

sfconservancy.org·Hacker News: Front Page·8mo ago·6 min read