Family Navigates Grief After Losing First Daughter to Rare Zellweger Syndrome While Raising Second Child
By
Susan Young
A baker's-dozen of insight crammed into one ring.
Summary
Aimee and Bryan Wingen lost their first daughter, Waylynn, to rare Zellweger syndrome in 2020. They have since navigated profound grief while raising their second daughter, Elsie, born in March. The family keeps Waylynn's memory alive through their bakery business and by openly sharing their story. The article explores the complexities of parenting after loss, especially around emotionally charged occasions like Mother's Day.
Key quotes
· 3 pulled'People say, ‘Oh, is that your first?’ And in that moment, my husband and I decide — do we want to tell them the truth or skip the grief about all [our] trauma?'
'But we also don’t want to ignore the fact that we had a whole other child.'
'Mother’s Day each year brings a tangle of emotions for the family.'
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